Registry of Registries (RoR)
The PARENT RoR is envisioned as a Web service to provide an added value to patient registries across the EU in order to assist humans to obtain reliable and up-to-date information about patient registry metadata.
The PARENT RoR provides more efficient use of resources in setting-up and managing patient registries.
It also leads to improvement in quality and scope of cross-border exchange of registry data for research and public health in EU thus establishing interoperability standards in data exchange.
Through the PARENT RoR users are able to search, browse and compare registries metadata on demand. The PARENT RoR helps users avoid wasting resources, creating information models de-novo, base legacy information systems on EU level endorsed standards, obtaining metadata that is comparable across many different data sets and benchmark metadata models between registries.